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Id : 532

Author :
Peters V.J.T., Meijboom B.R., Bunt J.E.H., Bok L.A., van Steenbergen M.W., de Winter J.P., de Vries E.

Title


Providing person-centered care for patients with complex healthcare needs: A qualitative study

Reference :


Peters V.J.T., Meijboom B.R., Bunt J.E.H., Bok L.A., van Steenbergen M.W., de Winter J.P., de Vries E.; Providing person-centered care for patients with complex healthcare needs: A qualitative study ;PLoS ONE vol:15.0 issue: 11 November page:

Link to article https://www.scopus.com/inward/record.uri?eid=2-s2.0-85096280988&doi=10.1371%2fjournal.pone.0242418&partnerID=40&md5=7aab2fb6912c25b88d8cf4c39f1be646
Abstract Background People with chronic conditions have complex healthcare needs that lead to challenges for adequate healthcare provision. Current healthcare services do not always respond adequately to their needs. A modular perspective, in particular providing visualization of the modular service architecture, is promising for improving the responsiveness of healthcare services to the complex healthcare needs of people with chronic conditions. The modular service architecture provides a comprehensive representation of the components and modules of healthcare provision. In this study, we explore this further in a qualitative multiple case study on healthcare provision for children with Down syndrome in the Netherlands. Methods Data collection for four cases involved 53 semi-structured interviews with healthcare professionals and 21 semi-structured interviews with patients (the parents of children with Down syndrome as proxy). In addition, we gathered data by means of practice observations and analysis of relevant documents. The interviews were audio-recorded, transcribed verbatim and analyzed utilizing the Miles and Huberman approach. Results Our study shows that the perspectives on healthcare provision of professionals and patients differ substantially. The visualization of the modular service architecture that was based on the healthcare professionals’ perspective provided a complete representation of (para)medical outcomes relevant to the professionals’ own discipline. In contrast, the modular service architecture based on the patients’ perspective, which we define as a person-centered modular service architecture, provided a representation of the healthcare service that was primarily based on functional outcomes and the overall wellbeing of the patients. Conclusion Our study shows that visualization of the modular service architecture can be a useful tool to better address the complex needs and requirements of people with a chronic condition. We suggest that a person-centered modular service architecture that focuses on functional outcomes and overall wellbeing, enables increased responsiveness of healthcare services to people with complex healthcare needs and provision of truly person-centered care. © 2020 Peters et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.



Results:


                    Category                    

             Certainity            
Heritage 0.0009
Archives 0.0000
Libraries 0.0005
Book and Press 0.0000
Visual Arts 0.0062
Performing Arts 0.0002
Audiovisual and Multimedia 0.0000
Architecture 0.9881
Adverstizing 0.0000
Art crafts 0.0028
General cultural dimension 0.0013
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